Living With This Thing Called Lupus…A Fighting My Lazy Bone Type of Day…

It’s been about a month now that I’ve known that what I have going on inside my body is SLE – Lupus. My husband went with me to my follow-up appointment yesterday, partly so he could ask the doctor any questions he might have, partly so that he could hear first hand from the horse’s mouth what is going on with me and partly in case I forgot anything that the doctor said. As of yesterday, I am lucky I think, that the results from my tests show the only thing I have is the SLE – Lupus,  no extra autoimmune diseases at this time, no organ damage so far.

There is something to be said about being “proactive” when it comes to our health. I am a firm believer in nipping stuff in the bud before it becomes something worse and harder to treat. So far the treatment that I am on, a mixture of Prednisone and Hydroxychloroquine has helped to tamp down my flares. Rather than a debilitating pain where I can’t use my hands, arms or legs, I now mostly just am feeling very tired at times. A real bone weary type of tired. A “Fighting My Lazy Bone” type of tired. I don’t seem to have the extreme stiffness in the morning that a lot of people have, my problems seem to be more in the area of trying to sleep at night. I seem to get leg aches, or just over all muscle aches. This is causing me to toss and turn and twitch therefore not really getting a good nights sleep. It doesn’t really hit me until the afternoon and then when I am driving home from work I just can’t wait to get home and crawl into my bed! Bed…the best invention in the world!

So we shall see how all of this goes. I am very fortunate to have a supportive husband and family and that is some good medicine right there.


About Moqqi

I was born in the Midwest but I have actually lived more of my life on the West Coast. I am looking forward to that day when I once again am living in the Midwest. Hopefully that will mean that I am retired and getting to live life at a bit of a slower pace! I've been married to the same guy for 36 years! We met when he was working for a semi-pro hockey team and I was selling tickets to the games. He also played hockey at an amateur and college level and I think I fell instantly in love when we went ice skating together and he saved me from crashing when someone behind me fell (I was skating backwards, he was skating forward, so we were facing each other.) and he reached out with his big, strong arms and grabbed both of my upper arms and just stopped me dead in my tracks to make sure I didn't fall over the person. My Hercules! I have two children, a son and a daughter. My son is an Registered Nurse and works in an ICU. He is married to a wonderful girl that I couldn't have hand picked better. They have produced the absolute, most cute and adorable Grandchildren that anyone could ask for! My daughter is now a Fifth Grade teacher. She has a joy and passion for teaching and loving her students that is not seen in many teachers these days. She truly found her calling. I have this blog because I thought it would be nice to have a place that I could share what is going on in our lives and I also just love to tell stories. I'm not a writer per se, but I do love a good story. Even if it's just a short little quip!
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